"Quality End of Life Care in Dementia: How do Family Carers View Quality"
||Friday 26th April 2013|
||12.30pm - 1.30pm (sandwich Lunch)|
Committee Room 2
(Ground floor) Medical School - Royal Free Campus
As a consequence of the ageing population, the number of people with dementia is rising. The number of people in Europe with dementia, for example, is currently about 7.7 million and will double by 2050. In the UK there are around 800,000 people with dementia and this is expected to be over 1 million by 2025. With no known disease modifying treatment for dementia, a growing concern and priority is end of life care.
People with dementia are often cared for by family members. There are currently estimated to be over 670,000 carers of people with dementia in the UK, however this is probably an underestimate. Carers spend more time with the person with dementia than anyone else, they are therefore the people who potentially know the most about the person with dementia. People with dementia at the end of life are often unable to communicate and therefore cannot tell us about their care, however the carers can. Very little is known about end of life care and dementia, and even less is known about carers and their perspective on end of life care.
This PhD is a qualitative study, it aims to explore the features of good quality end of life care for people with dementia from the perspective of family carers. Using in-depth interviews I have interviewed 46 family carers exploring their experiences and views of quality end of life care for dementia.
In this seminar, I will give you an overview of the current understandings of quality of care and an overview of quality end of life care for dementia. I will discuss how I have collected my data, including the challenges of in-depth interviews about such a sensitive topic as death. Finally, I will introduce what I believe to be some of the early themes emerging from the data, including: battles with professionals about stopping or continuing treatment, and neglect of care and compassion.
Page last modified on 19 apr 13 16:58 by Maryanne Ogbogbo