NICOR: National Institute for Cardiovascular Outcomes Research

NICOR

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Datasets

Paediatric cardiac surgical or interventional procedures are defined as any cardiac or intrathoracic great vessel procedure carried out in patients under the age of 16 years.

Adult congenital cardiac procedures are defined as those performed for a cardiac defect present from birth. 

This does NOT include surgery or therapeutic catheterisation for degenerative disease, such as aortic aneurysm or dissection or mitral valve surgery, even if associated with hereditary conditions such as Marfan’s syndrome or other connective tissue diseases. 

Aortic valve disease requiring treatment in adult life is always a dilemma, as many patients have had some aortic valve anomaly from birth. 

As suggested by the SCTS some years ago, it seems reasonable to suggest that as a general practical cutoff patients under the age of 30 years who have aortic valve procedures should be regarded as having congenital heart disease but those over the age of 30 should be regarded as having degenerative valve disease unless they have had previous treatment for aortic stenosis during childhood.

Patent foramen ovale is present from birth and PFO closure therefore falls within the remit of congenital CCAD.

All paediatric and adult congenital procedures should be submitted to congenital CCAD, others to the relevant adult databases.

How to import existing data

How to import data to PAEDS

Guide for the Paediatric Cardiac Surgery and Congenital Heart Disease Service Audit

Information on datasets

Congenital Dataset 4.09 and Infective Endocarditis 1.01 Dataset. (revised 14/04/2012)

This is the current dataset.

Specific Procedure Coding V4.48 28 02 2012 

Describes the criteria and process for determining the specific procedure assignment. (revised 28/02/2012)

European Paediatric Cardiac Code Short List. OPCSV4.6 (revised 1/04/2012)

Copyright, database rights and all other rights in and to this European Paediatric Cardiac Coding System ("System") and in and to every part of it belong to the Association for European Paediatric Cardiology. Hospitals, medical centres and similar institutions may use, copy, store and otherwise reproduce the System for internal business purposes only at their own risk and responsibility provided that no modifications of any nature are made to the System and that all copies are clearly marked as being proprietary to the Association for European Paediatric Cardiology (14/04/2008)