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NICOR: National Institute for Cardiovascular Outcomes Research

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Governance

The National Congenital Heart Disease (NCHDA)Steering Committee represents key stakeholders including clinical, professional bodies and patient representation. The Steering Committee is responsible for promoting data collection within specialist paediatric centres through newsletters and user group meetings and monitoring audit data contribution and addressing issues as appropriate.

NCHDA Steering Committee Membership

Name Job Title Representation
 Dr Rodney Franklin   (chair) Consultant Paediatric Cardiologist (Royal Brompton Hospital) and Congenital Heart Disease Audit Clinical Lead Congenital Heart Disease Audit
 Miss Carin Van Doorn
Head of Congenital Cardiac Surgery (Leeds General Infirmary)
Chair of SCTS Congenital Subcommittee
 Prof David Anderson
President
British Congenital Cardiac Association (BCCA)
 Mr David Barron Cardiac Surgeon (Birmingham Children’s Hospital) Society for Cardiothoracic Surgery (SCTS)
 Dr Kate Brown Consultant Intensivist (Great Ormond Street Hospital) Research and Outcomes lead 
 Dr Kate English Consultant in Adult Congenital  Heart Disease  (Leeds General  Infirmary) Adult Congenital Heart Disease
 Dr Andrew Tometzki  Consultant Paediatric Cardiologist   (University Hospitals Bristol NHS  Foundation Trust)
British Congenital Cardiac Association (BCCA)
 John Stickley
Database Manager (Birmingham  Children’s Hospital) NCHDA Database Managers
 James Chal
Chief Operating Officer
NICOR
 Bob Ward
  Patient/Public representation
 Dr Jiaqiu Wang Information Analyst NICOR
 Dr David Cunningham Senior Strategist NICOR
 Nadeem Fazal Service Manager  NICOR 
 Tracy Whittaker/
 Sarah Ajayi
Project Manager  NICOR 
 Andrew Harrison Senior Analyst Developer  NICOR
 Lin Denne Clinical data auditor  NICOR 

2015/16 Steering Committee meetings:

June 21st 2016

September 12th 2016

December 13th 2016

March date (during the SCTS conference date tbc)

The notes of all previous meetings are all available on the NCHDA portal