NCL RESOURCE - A GATEWAY FOR BATTEN DISEASE

Research Support

Some NCL Support groups offer grants to support research. These range from assistance to attend meetings to 3-year PhD Studentships or Postdoctoral fellowships. This page provides a list of such groups who are actively offering research support.

Europe

United Kingdom

• Batten Disease Family Association
  BDFA provides support, information and networking opportunities for the families, carers and professionals who have contact with a child or adult with Batten disease, and promotes research into Batten disease.
  Recruitment is now underway to develop a multidimensional clinical assessment tool for Batten disease: Batten disease recruitment (pdf file).

Belgium

The Czech Republic

Denmark

Finland

France

Germany

• NCL-Foundation (NCL-Stiftung)

Ireland

• Bee for Battens operated by the Saoirse Foundation

Italy

The Netherlands

Norway

Portugal

Russia

Spain

Sweden

Switzerland

North America

Canada

USA

• Batten Disease Support and Research Association
• Children's Brain Diseases Foundation
  350 Parnassus Ave, Suite 900, San Fransisco, California 94117, +1 415 566 5402
• Beyond Batten Disease

Latin America

Brazil

Chile

Costa Rica

Venezuela

Africa

South Africa

Australasia

Australia

New Zealand

Useful Links