Palliative treatment

Much experience has been gained in the palliative treament of those affected by NCL, especially as the disease progresses over time.

This page contains files that may be of help to those involved in caring for patients. In addition experienced clinicians who are willing to offer advice are listed on a separate page.

Palliative Treatment in the NCLs (pdf file)

Mycophenylate is an anti-rejection drug that may benefit the motor symptoms of JNCL. Trials to test this further are in planning.