Family Support

Many groups exist around the world with an interest in Batten disease. These may support families or raise the profile of Batten disease or raise money for research or other family needs. Read Jumpstarting research into neglected diseases for examples of the difference such groups can make to rare diseases. This page provides a list of support groups.

Europe

United Kingdom

Belgium

The Czech Republic

Denmark

Finland

France

Germany

Ireland

Italy

The Netherlands

Norway

Portugal

Russia

Serbia

Spain

Sweden

Switzerland

North America

Canada

USA

Latin America

Brazil

Chile

Costa Rica

Venezuela

Africa

South Africa

Australasia

Australia

New Zealand

Useful Links