GDPR

General Data Protection Regulation and Data Protection Act 2018 for health and care research.

Version 1: 22/05/2018

Title project: Abnormal Genes and Proteins in Inflammatory Bowel Disease (IRAS 28159)

Principal Investigator: Professor Anthony W Segal

University College London (UCL) is the sponsor for this study based in the United Kingdom. We will be using information from you and your medical records in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly. UCL will keep identifiable information about you for 20 years after the study has finished.

Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.

UCL will collect information from you and your medical records for this research study in accordance with our instructions.

UCL will use your name, NHS number and contact details to contact you about the research study, and make sure that relevant information about the study is recorded for your care, and to oversee the quality of the study. Individuals from UCL and regulatory organisations may look at your medical and research records to check the accuracy of the research study. University College London Hospital (UCLH) will pass these details to UCL along with the information collected from you and your medical records. The only people in UCL who will have access to information that identifies you will be people who need to contact you to arrange appointments relating to the study or audit the data collection process. The people who analyse the information will not be able to identify you and will not be able to find out your name, NHS number or contact details.

You can find out more about how we use your information at www.ucl.ac.uk/legal-services/ucl-general-data-protection-regulation-gdpr or by contacting gdpr@ucl.ac.uk.