National Amyloidosis Centre

Clinical Staff
Head/Clinical Director
Professor Philip Hawkins +44 (0)20 7433 2815/2816
     
Emeritus Professor/Consultant Professor Sir Mark Pepys +44 (0)20 7433 2801/2802
     
Senior Lecturers/Consultants Dr Julian Gillmore +44 (0)20 7433 2726
  Dr Helen Lachmann +44 (0)20 7433 2804
  Dr Ashutosh Wechalekar +44 (0)20 7433 2758
  Dr Carol Whelan +44 (0)20 7433 2875
     
Clinical Fellows
Dr Mark Coyne
+44 (0)20 7433 2823

Dr Marianna Fontana +44 (0)20 7433 2823
  Dr Shameem Mahmood +44 (0)20 7433 2770
  Dr Ketna Patel
+44 (0)20 7433 2823
  Dr Cristina Quarta
 
  Dr Rabya Sayed
+44 (0)20 7433 2823
  Dr Taryn Youngstein
+44 (0)20 7433 2763
     
Clinical Research Nurses Thirusha Lane (Lead)
+44 (0)20 7433 2759
  Darren Foard +44 (0)20 7433 2814
  Lisa Rannigan +44 (0)20 7433 2732
  Rene Williams
+44 (0)20 7433 2797
     
Clinic Coordinator
Eleanor Pyart
+44 (0)20 7433 2738
Clinic Nurses
Alica Bangova
+44 (0)20 7433 2799
  Annie Hughes +44 (0)20 7433 2730
     
Appointments &
Office Manager

Ramon Lamarca +44 (0)20 7433 2813
     
Centre Administrator/Academic PA
Jean Berkeley
+44 (0)20 7433 2816
     
Unit Secretaries
  +44 (0)20 7433 2798/2811
Transport & Accommodation
  +44 (0)20 7433 2812
General Enquiries
  +44 (0)20 7433 2725
Fax
  +44 (0)20 7433 2817


The NHS National Amyloidosis Centre is the only centre in the UK specialising in amyloidosis and is part of University College London Centre for Amyloidosis and Acute Phase Proteins, one of the world’s leading centres for amyloid research. The Centre has “state of the art” clinical and research facilities, and a team of highly qualified clinical, research and support staff.

We pioneered scintigraphic imaging (scanning) of amyloid as a quantitative diagnostic procedure and provide a comprehensive clinical service for patients with all types of acquired and hereditary systemic amyloidosis. The NHS National Amyloidosis Centre is commissioned by the NHS National Specialised Commissioning team and funded by the Department of Health to provide a diagnostic and management advice service for the UK’s national caseload of patients with amyloidosis and related disorders. We have evaluated over 5000 patients. The clinical service includes:

  • Detailed clinical assessment.
  • Diagnosis, quantification and monitoring of amyloidosis with whole body SAP scintigraphy.
  • Review of diagnostic biopsies and specialised immunohistochemistry to determine amyloid type.
  • Characterisation and exclusion of hereditary amyloidosis by DNA testing; genetic counselling.
  • Additional imaging studies when appropriate, which may include DPD scanning and cardiac MRI scanning.
  • Recommendations for treatment and monitoring response.
  • Measurement and monitoring of specialised biochemical (blood) tests for serum free light chains and serum amyloid A protein.
  • 3‑12 monthly follow‑up to assess response and further treatment requirements. Sometimes follow‑up assessment can be performed by telephone if patients live far away.
  • Providing information and support to amyloidosis patients, their families and health providers.
  • Systematic evaluation of existing and new treatments.
  • Diagnosis, monitoring and treatment of inherited fever syndromes.

Page last modified on 11 dec 14 13:00 by E A (Beth) Jones