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Principal investigator - Prof Myra Bluebond-Langner, Institute of Child Health
Project development team: Professor Patrick Stone (MCPCRD), Professor Monica Lakhanpaul (ICH), Professor William van't Hoff (GOSH) , Dr Louise Jones (MCPCRD), Lizzie Chambers (Together for Short Lives), Dr Bridget Candy (MCPCRD), Dr Linda Oostendorp, Victoria Vickerstaff (MCPCRD), Dr Briony Hudson (MCPCRD & ICH);
The BRAVES project (Barriers to Research Access: Voices, Experiences and Solutions) is a collaboration between The Marie Curie Research Department and The Institute of Child Health. The project aims to provide evidence based guidance for recruitment to studies involving children with life limiting conditions or life threatening illnesses. This mixed methods project will explore the impact and effectiveness of recruitment practices from the perspective of children and young people, their families, researchers and health care professionals over the course of illness (e.g. diagnosis, deterioration, death and bereavement). The findings of this project could inform the design and evaluations of recruitment in future studies and contribute to increasing research participation both in this population and other populations in which research recruitment has been an issue.
