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External resources

Many charities and organisations produce resources about dementia in people with an intellectual disability. Below is a list of some resources which are available online.

British institute of Learning disabilities

The British institute of Learning disabilities (bild) produce two easy-read factsheets about dementia. Available as PDFs from:

http://www.bild.org.uk/resources/ageingwell/dementiafactsheets/

Factsheet one: "What is dementia?"

Covers who can get dementia, diagnosis, treatment, and how to reduce risk.

Factsheet two: "Supporting a person with dementia"

Covers living with dementia, communication, staying active and behaviour.

Down's Syndrome Association

Webpage resource for carers of people with Down syndrome and dementia:

https://www.downs-syndrome.org.uk/for-families-and-carers/health-and-well-being/getting-older/alzheimers-disease/

Alzheimer's Society

Section of webpages about dementia in people with learning disabilities, aimed at carers:

https://www.alzheimers.org.uk/about-dementia/types-dementia/learning-disabilities-dementia

Factsheet for carers called "Learning disabilities and dementia" (available as PDF or hardcopy):

https://www.alzheimers.org.uk/sites/default/files/migrate/downloads/factsheet_learning_disabilities_and_dementia.pdf

Shared Lives

Webpage/PDF resource aimed at carers called "Growing older with learning disabilities":

https://sharedlivesplus.org.uk/images/publications/Family/growing-older-with-learning-disabilities-dementia.pdf

National Down Syndrome Society (NDSS)

American webpage resource for carers called "Alzheimer's Disease & Down Syndrome":

https://www.ndss.org/resources/alzheimers/

NDSS also produce a PDF booklet about general ageing in people with Down syndrome, which contains some information on dementia and care:

http://www.ndss.org/wp-content/uploads/2017/11/Aging-and-Down-Syndrome.pdf

NDSS have also produced a YouTube video for carers and services about supporting individuals with an intellectual disability and dementia:

https://www.youtube.com/watch?v=wrKLURsAy6Y&feature=youtu.be

Alzheimer's Disease International

American webpage/PDF resource for carers called "Dementia and Intellectual Disabilities":

https://www.alz.co.uk/adi/pdf/intellectualdisabilities.pdf

British Psychological Society and Royal College of Psychiatrists

PDF called "Dementia and People with Intellectual Disabilities: Guidance on the assessment, diagnosis, interventions and support of people with intellectual disabilities who develop dementia", aimed at people working in clinical and social care services:

https://www1.bps.org.uk/system/files/Public%20files/rep77_dementia_and_id.pdf