MRC Centre of Epidemiology for Child Health
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Using multiple sources to improve and measure case ascertainment in surveillance studies: 20 years of the British Paediatric Surveillance Unit (Journal of Public Health, 2006)
Surveillance of rare diseases: a public health evaluation of the British Paediatric Surveillance Unit (Journal of Public Health, 2011)
British Paediatric Surveillance Unit
Many of our surveillance studies of infections and congenital disorders rely on information that is gathered through the 3,000 paediatricians who participate in the British Paediatric Surveillance Unit (BPSU) reporting scheme. The BPSU co-ordinates the collection of UK-wide data on rare childhood conditions and uncommon infections.
The BPSU is a joint initiative between our centre, the Royal College of Paediatricians and Child Health (RCPCH) and the Health Protection Agency (HPA) and includes a partnership with Health Protection Scotland.
Based at the RCPCH, it has recently celebrated its 25th anniversary. The MRC CECH provides scientific support and advice to investigators carrying out studies through the BPSU as well as strategic direction to the unit.
Our work with the BPSU
Rare diseases and infections, although individually uncommon, are an important cause of disease and death in childhood. These conditions, as well as having devastating consequences for affected children and their families, also pose a large financial burden on health services.
A number of our researchers are, or have been, principal investigators on BPSU studies:
- hip dysplasia
- medium chain acyl CoA dehydrogenase deficiency
- congenital toxoplasmosis
- congenital hypothyroidism
- congenital adrenal hyperplasia
- congenital cataract
- severe visual impairment and blindness
- congenital rubella
- congenital cytomegalovirus
- neonatal herpes
Dr Rachel Knowles is the BPSU's Senior Medical Advisor on Non-Communicable Diseases and a member of the executive committee.
Governance and strategic direction
The UCL Institute of Child Health is one of the unit's parent bodies. The Institute is represented by Professor Carol Dezateux who is a member of the BPSU executive committee
British Ophthalmic Surveillance Unit
Page last modified on 12 oct 11 11:32